I recently
found out about misophonia. You can look it up online and read about it but
since its something I've lived with for as long as I can remember, though I
wasn't aware there was a term or an explanation for what I was dealing with,
let me share with you what it is from my perspective and experience. It can be
summed up by the hatred of sounds. Now, while that gives an outsider a brief
idea of what the term means, that is far from an all-inclusive explanation. I
might change it to say a severe uncontrollable
hatred for sounds that trigger irrational responses. I can remember sitting
around the dinner table, maybe junior high age, and trying to eat as quickly as
possible so I could leave the table and avoid having to sit there and endure
the torture of listening to the chewing. Now, these aren't people who are loud
and noisy eaters. It's merely the sounds that people make when they eat or
drink something that I am highly sensitive to. It was not only annoying but
something that frustrated and angered me to no end. Ticking clocks, watches,
anything w/ a repetitive sound was another noise that irritated me. Not only
did these things bother me intensely, I seemed to be able to hear them w/ a
greater sensitivity than anyone else. I'm sure there is a connection between my
sensitive hearing and this misophonia thing.
There are
many sounds that irritate and frustrate me, something I couldn't come up with
any explanation for. Why was I reacting so irrationally to something as
seemingly innocent as a ticking watch or some other repetitive sound? I tried
and tried to figure it out. Was there something in my life that started it? Did
these sounds trigger memories of something unpleasant? Despite my best efforts,
I never could figure it out, nor did I know how to deal with this constant
frustration. Over the years some of these triggers have become more sensitive
and it seems there are more than I first remember dealing with. I have learned
this is part of what happens with this issue. So not only do more triggers often
develop throughout ones life, the responses to these triggers are often
strongest when created by ones we are closest too. Sorry family and close
friends.
So not only
are these sounds frustrating to me, they initiate that flight or fight response
that is often attributed to fear or life threatening situations. I often want
to scream in rage and frustration at the offender or turn the radio/tv/etc up
so loud that it drowns out whatever the offending sound is or I need to get
away from it. Far away. And quickly. Far enough away to escape the sounds, calm
down and eliminate the offending situation from being the only thing on my
mind. That can be hard to do when I'm at work or home, a place that ought to be
a sanctuary, and I can't leave or escape. Feeling trapped for any reason is not
a good feeling and even though my life is in no way threatened by these
offenses, I often feel my sanity is. Even in the midst of a situation where
noises are triggering this ridiculous response, when my emotions feel out of
control, I do have the presence of mind to understand what is happening even if
I don't have the control to stop them.
I also
often feel personally attacked, as if the offender is deliberately wanting to
torture me. These people often have no idea that I am feeling what I'm feeling
and truly aren't trying to piss me off but it very often feels as if it is on
purpose, that they just don't care. As a result of this, I am very aware of my
surroundings and the affects I may have on anyone through my own actions and
sounds. So when someone who seemingly has no understanding or consideration for
those around them it is deeply upsetting and frustrating for me. How can they
not know?? How can they not care??!! They seem to be selfish, inconsiderate,
jerks, at least that is what it feels like to me when I'm forced to listen to
the neighbors constantly yapping dog or their obscenely loud obnoxious 'music'
or something like that. It is all extremely unpleasant to deal with and far too
often very debilitating.
Something
else that I feel is tied to this as it elicits the same feelings and reactions
is having to repeat myself for any reason or someone repeating things to me. It
makes me absolutely crazy! I have no explanation for it, much the same as my
reaction some of the other sounds I have mentioned. Listening to someone tell
numerous people the same story is just maddening. "I heard you the first
time, go find a pirate to sit on!!" to borrow an appropriate quote from
Paris of Gilmore Girls.
From the
limited sources available that I have read trying to learn about this and
understand what this is, I understand it to be a problem of wiring in the brain
where wires get crossed somehow and when a sound triggers my brain, it creates
this response. My brain doesn't process these sounds correctly. This is of
course paraphrased and is my understanding of this issue. I don't want to call
it a disease as I don't know that it is. There is not a lot of research on it
though more and more is coming out. As far as I know there is no cure and any
treatment available seems to be psychological that may include trying to
retrain your brain to respond in a more normal way. Again, this is just what
I've gleaned from what I've read.
Having
learned about misophonia has given me some measure of relief if only in knowing
there is an explanation to my irrational responses to these sounds. I can stop
torturing myself trying to figure out why I am feeling the way I'm feeling and
that brings me some peace. I still hate that I have this challenge and I hate
my response to it, especially when it hurts people I care about. But knowing
what it is helps me deal with it. I now sleep every night w/ a white noise
machine, a device I should have invested in a long time ago but only purchased
recently. It doesn't always drown out all the neighbors' noise but it cuts down
a lot and I use earplugs far more regularly than I'd like to. I try to be more
pre-emptive in dealing with situations that I know are likely to be triggers.
If I am at home, I don't even try to sleep w/o the white noise machine on.
Instead of trying to sleep w/o it, hoping foolishly that it will be a quiet
peaceful night, and more often than not putting myself in a situation where I’m
laying there getting angrier and angrier w/ the people talking inconsiderately
outside my window, I turn it on as soon as I'm getting ready for bed. This has
been a great way to cut back on my stress at bedtime. Before I started using
it, it would often get to the point where I was so angry and frustrated that I
couldn't do more than cry and rage and pray and hope they shut up long enough
for me to fall asleep. That has happened more times than I can count.
I know
people don't understand it, the depth of the feelings of discomfort, rage, and
helplessness that anyone w/ this challenge suffers as I myself don't really
understand it, but I hope that this gives you some insight and understanding
into what I deal w/ regularly and anyone else w/ misophonia deals w/. Other
people might have other triggers but I believe the responses and feelings are
very similar, though I can't speak for anyone else. I don't share this with you
to make you feel self-conscious or uncomfortable but that you might understand
and have some compassion and patience w/ me if I snap at you for no reason or
walk away without any explanation while you're eating or tapping your fingers
or something. I don't want people to avoid me but I do want you to understand
my struggles and know they aren't about You in particular. Its not you, its
everyone. Ha! Ok, I'm just kidding… kind of. Really it's just me. Just know
that if I walk away it is for the best, that I will come back when the coast is
clear, the eating has stopped, whatever was offending has ceased doing so, and
I have calmed myself down.
Thanks for
listening and learning a little bit more about me. Now on to other more
interesting and good things. J
If you want to find out more about it you can do a simple
search. This website has some helpful info: http://www.misophonia.com/.
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